PERSONALIZED SUPPORT FROM THE START
for HAEGARDA ConnectSM 8 AM - 8 PM
HAEGARDA Connect is committed to helping you gain access to HAEGARDA by offering personalized 1:1 services. Your treatment is our priority. Know you’re not alone when you have HAEGARDA Connect.
If you need to find a doctor, the US Hereditary Angioedema Association can help you find an HAE specialist in your area
Discover patient organizations that advocate for people with HAE
- US Hereditary Angioedema Association (HAEA)
- International Patient Organization for C1 Inhibitor Deficiencies (HAEi)
Join support groups and discussion boards
Learn more about HAE from webinars and live dinner programs, and discover a rare diseases organization
Living with HAE may mean making some adjustments and managing things a bit differently. Getting support from someone who knows what it’s like to have HAE can help you navigate through any challenges that come up so you can continue living a healthy, active life.
"Because I’ve lived without HAEGARDA, I know what a difference it makes."
"Don't let the disease control your life if you can control your disease."
"It's important to me to prevent my HAE attacks because I'm a busy mom, a very busy wife, I have a job, I travel, I'm a patient advocate."
LIVE EVENTS AND WEBINARS
Join us for a free live educational program for HAE patients and their
These programs feature a presentation from a physician who
and stories from an HAE patient like you.
ADVOCATE FOR YOUR FAMILY
HAEGARDA is indicated for patients 6 years of age and older. This means your loved one can live a full, happy life with HAE from childhood through adult years. You may be concerned about how having HAE will affect your loved one's life and your life. Many people find they can help successfully manage their loved one's condition by working with their doctors and live healthy, active lives.
HAE affects everyone differently
No two people are the same. The severity of HAE attacks, how often/where they occur, and the timing of attacks vary widely among individuals. The frequency of attacks can even change as a person gets older. Additionally, how people respond to treatment can vary as well, based on factors such as their weight.
Having HAE means your loved one will need to take a few precautions, such as:
Know the precautions and understand triggers of an attack
Some of the following may trigger an attack: