PERSONALIZED SUPPORT FROM THE START
Call 1-844-HAEGARDA
(1-844-423-4273)
for HAEGARDA ConnectSM 8 AM - 8 PM
HAEGARDA Connect is committed to helping you gain access to HAEGARDA by offering personalized 1:1 services. Your treatment is our priority. Know you’re not alone when you have HAEGARDA Connect.
Personalized Support from a dedicated case manager
- Provides ongoing, one-on-one support throughout the HAEGARDA journey
Self-administration training
- A HAEGARDA nurse will teach you, parents, and/or caregivers online or in person how to prepare the medicine and self-administer it correctly
Financial assistance programs
- Assistance with insurance navigation including co-pay support, as well as research into financial assistance options
HAEGARDA Advocate Program
-
Provides you with the opportunity to learn from someone who has experience with HAE and therapy with HAEGARDA
- Advocates are not healthcare providers or medical experts and are compensated for their participation. For medical questions, patients should contact their physicians
ADVOCATE FOR YOUR FAMILY
HAEGARDA is indicated for patients 6 years of age and older. This means your loved one can live a full, happy life with HAE from childhood through adult years. You may be concerned about how having HAE will affect your loved one's life and your life. Many people find they can help successfully manage their loved one's condition by working with their doctors and live healthy, active lives.
HAE affects everyone differently
No two people are the same. The severity of HAE attacks, how often/where they occur, and the timing of attacks vary widely among individuals. The frequency of attacks can even change as a person gets older. Additionally, how people respond to treatment can vary as well, based on factors such as their weight.
Having HAE means your loved one will need to take a few precautions, such as:
- Identifying personal triggers and symptoms
- Always having an on-demand rescue treatment nearby
- Working to reduce physical and emotional stress
Know the precautions and understand triggers of an attack
Some of the following may trigger an attack:
Fatigue or Stress
Accidental Trauma
Dental or Medical Procedures or Surgery
Fever, Illness, Infection
Menstrual Cycle, Hormonal Changes
Certain Medications
Caregivers need support too. Find resources here.
- US Hereditary Angioedema Association (HAEA)
- With HAEGARDA ConnectSM learn about the resources available to your loved one with HAE
- Help them get the conversation started
HAE RESOURCES
If you need to find a doctor, the US Hereditary Angioedema Association can help you find an HAE specialist in your area
Discover patient organizations that advocate for people with HAE
- US Hereditary Angioedema Association (HAEA)
- International Patient Organization for C1 Inhibitor Deficiencies (HAEi)
Join support groups and discussion boards
Learn more about HAE from webinars and live dinner programs, and discover a rare diseases organization
- Learn about our webinars and live learning events in your area
- Find information from the National Organization for Rare Disorders, Inc (NORD)
WEBINARS
Join us for a free live virtual educational program for HAE patients and their
caregivers!
These programs feature a presentation from a physician who
treats HAE
and stories from an HAE patient like you.
HAEGARDA live webinar series
JOIN ONLINE: Take part in our live webinar series, where you can ask questions and join in the discussion.
or call 1-844-499-5646
Anyone under 18 years of age must be accompanied by a parent or caregiver