Watch stories about real HAEGARDA patients living the difference
“Knowing that I can have preventive treatment that is effective allows me to do things with peace of mind.”
–Leah, Started HAEGARDA in 2017
HEAR FROM REAL HAEGARDA
PATIENTS LIVING THE DIFFERENCE
Connect with a HAEGARDA Advocate today
Our HAEGARDA Advocates are people just like you who also have personal experience living with HAE. Reach out and connect with someone who understands what you are going through.SIGN UP
"Now that HAEGARDA controls my attacks, I can be there for my family and live my life. It gives me more freedom to do things in my life that I would be wary to do otherwise."
Started HAEGARDA in 2018
Connect with others in the community
We want to provide you with more information and resources, as well as provide you with an opportunity to speak to others from the HAE community. A part of that support includes dinner programs and webinars to help you learn more and understand your disease.
Join dinner programs or a webinar and learn more about HAE.LET'S CONNECT
Living with HAE may mean making some adjustments and managing things a bit differently. Getting support from someone who knows what it’s like to have HAE can help you navigate through any challenges that come up so you can continue living a healthy, active life.
"I don’t have to plan my calendar based on my HAE attacks. I’m able to plan my life like normal, without worrying about an attack or telling people that I can’t participate in things long-term because I may have an attack."
Started HAEGARDA in 2017
SHARE YOUR EXPERIENCE
Personal stories serve as a powerful tool for raising disease awareness and offering valuable insight into the HAEGARDA patient experience. By sharing your experience, you'll offer other people living with HAE encouragement, assistance, and advice by:
- Sharing your own experiences living with HAE
- Providing insights into HAEGARDA as a preventive therapy
- Helping others to better understand and manage HAE and HAEGARDA