Connect with others in the community

We want to provide you with more information and resources, as well as provide you with an opportunity to speak to others from the HAE community. A part of that support includes dinner programs and webinars to help you learn more and understand your disease.

Join dinner programs or a webinar and learn more about HAE.


Do you have HAE and want to talk with your doctor about HAEGARDA?

We have you covered.

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Personal stories serve as a powerful tool for raising disease awareness and offering valuable insight into the HAEGARDA patient experience. By sharing your experience you'll offer other people living with HAE encouragement, assistance, and advice by:

  • Sharing your own experiences living with HAE
  • Providing insights into HAEGARDA as a preventive therapy
  • Helping others to better understand and manage HAE and HAEGARDA

We would like to hear your experience

Sign up today to share your experience about living with or caring for someone with HAE.

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