REAL STORIES FROM HAEGARDA PATIENTS
Connect with a HAEGARDA Advocate today
Our HAEGARDA Advocates are people just like you who also have personal experience living with HAE. Reach out and connect with someone who understands what you are going through.
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Alexa
"HAEGARDA prevents my HAE attacks and has made my life more manageable. I can go to work, and walk 10,000 steps a day without my feet swelling."
Started HAEGARDA in 2017
Zahra
"I can't remember the last time I had an attack. Preventing my attacks with HAEGARDA allows me to be independent, confident, and free because I can take it with me wherever I go."
Started HAEGARDA in 2018
Leah
"Since starting HAEGARDA I haven't had to use my rescue medication in over 2 years. I always carry it with me but it’s nice to know I haven’t needed to use it."
Started HAEGARDA in 2017
Trista
"Now that HAEGARDA controls my attacks, I can be there for my family and live my life. It gives me more freedom to do things in my life that I would be wary to do otherwise."
Started HAEGARDA in 2018
We want to hear about your HAE journey
Help inspire others with you or your child's experience.
Submit your story Patient Success Stories BrochureConnect with others in the community
We want to provide you with more information and resources, as well as provide you with an opportunity to speak to others from the HAE community. A part of that support includes dinner programs and webinars to help you learn more and understand your disease.
Join dinner programs or a webinar and learn more about HAE.
LEARN MOREDo you have HAE and want to talk with your doctor about HAEGARDA?
We have you covered.
Start the conversation EMAIL TO MEHAEGARDA ADVOCATES
Living with HAE may mean making some adjustments and managing things a bit differently. Getting support from someone who knows what it’s like to have HAE can help you navigate through any challenges that come up so you can continue living a healthy, active life.
Jason
"One of the ways that HAEGARDA has added convenience to my life is that HAE is no longer an everyday challenge for me."
Started HAEGARDA in 2017
Cheryl
"Having a therapy that addresses the root cause of HAE is important to me. It’s like filling in the missing puzzle piece of C1-INH my body doesn’t make."
Started HAEGARDA in 2017
Machelle
"I don’t have to plan my calendar based on my HAE attacks. I’m able to plan my life like normal, without worrying about an attack or telling people that I can’t participate in things long-term because I may have an attack."
Started HAEGARDA in 2017
Our HAEGARDA Advocates are people who have personal experience living with HAE, so they know what you’re going through. They offer you encouragement, assistance, and advice by:
- Sharing their own experiences with HAEGARDA and life with HAE
- Answering nonmedical questions†
- Helping you better understand and manage your therapy
† Advocates are not healthcare providers or medical experts and are compensated for their participation. For medical questions, you should contact your physician.
Where do I start?
Connect with a HAEGARDA Advocate.
Call 1-844-573-7021, from 9 AM to 9 PM ET, for more information about the program.